chances of bad news at 20 week scan mumsnet

To comment on this thread you need to create a Mumsnet account. Tommys is a registered charity in England and Wales (1060508) and Scotland (SC039280). Those two weeks were agonising for us both. However, at the time neither of us could articulate that. The scan can provide information that may mean you have to make further, important decisions. So choroid plexus cysts on their own, no problem, but if there's something else wrong, then that's a problem. For many other women, the 18-20 week scan was the point at which they discovered the baby had serious problems. And this baby sort of floated, and occasionally there was a slight movement, but it was very you could almost see that he was really poorly just from looking at the screen. I can feel my child kick, it responds when he shouts at football - I mean literally, this baby used to dance around whenever he'd like scream at a goal - and there cannot be anything wrong with this child because it's part of us already. Within two days I was waiting in my local EPU unit for further tests. And it was Christmas Eve and at the time I didn't think, the sonographer did spend a little bit of time scanning us and queried my dates several times and then explained that she couldn't quite see the baby's heart properly and would we come back in a couple of days? This time, they discovered the baby has a two vessel cord (only one vessel from placenta to baby instead of two) and I've been monitored to make sure the baby grows properly and kidneys aren't damaged. And that was Monday afternoon. No one else felt him kick. But that was too easy. When I told him what had happened, he refused to believe anything was wrong and said he'd sort it out when he came home. This one cannot show you anything, that's what's inside your mind. Several parents said they would have preferred being told something, even it was vague. So we went back the day after Boxing Day, the 27th, and the consultant greeted us, which made my alarm bells go, and she started scanning us and I think her lines were, 'What concerns me about this baby is that they've got a diaphragmatic hernia, which has meant that part of the stomach of the baby was in its chest cavity.'. For women who have been given distressing news about their baby during the scan, there should be a health professional available to provide immediate support. [Husband] couldn't make it. 26/09/2019 22:46. No, you couldn't see there was anything wrong. As though I went power mad for a week, killing my innocent unborn child, and now I am tainted for ever. I was becoming numb to the whole process. Immediately I knew what decision we should take. Dont include personal or financial information like your National Insurance number or credit card details. And having read, since read my information on Edwards' syndrome, a good 85 per cent have problems with the heart. But it is a soft marker for Edwards' syndrome. So we'd gone through the Down's syndrome or worse scare, we'd had conversations about what we would do, if it was confirmed that it was Down's syndrome or another syndrome, another sort of chromosome abnormality. We bought little outfits, teddies, and researched all the vitamins and foods that I could eat. I know it sounds odd that you want to hear that it's wrong, but you, you know it's wrong, and you, you want to be reassured either that it's okay or is there something seriously wrong. If an abnormality is confirmed or suspected, referral is usually required, although some obvious major fetal abnormalities, such as anencephaly, may not require a second opinion (this should be decided by local guidelines). You have rejected additional cookies. 13/12/2020 20:45. And I'm glad I did and she's glad she didn't. So even if anomolies are found, they don't always mean a problem.. x. I had issues at the 20 weeks scan with both of mine. I wasn't ready to make a decision straight away, and I was told I could call them in the morning. Sometimes specialist scans such as 3D scans, or MRI scans, are used to examine the baby in greater detail. Tissue paper will be tucked around your clothing to protect it from the ultrasound gel, which will then be put on your tummy. This publication is available at https://www.gov.uk/government/publications/screening-tests-for-you-and-your-baby/11-physical-conditions-20-week-scan. And the local hospital wanted to send us off to the regional hospital to actually confirm that, and were not really prepared to say at that time that there was something very seriously wrong. So we went home, me to rest in an attempt to prevent miscarriage, my partner to reassure us both. It's quite common, perhaps 1 in 10 they find these, and within a few weeks they disappear. On the third day, we got a phone call. Public Health England (PHE) created this information on behalf of the NHS. We must have had one before that as well, we must have had one before that, but it came back quite normal. 'Soft markers'. It's a bit at the back of the brain and - no I can't remember what it is - it's called, it's something that's called Dandy-Walker mal, The Royal College of Obstetricians and Gynaecologists (RCOG) have produced a report on Termination of Pregnancy for Fetal Abnormality in England, Scotland and Wales (May 2010). Thinking back, I don't know how we left without him. No one else ever met the object of my grief. And I, my husband and I both ran our own business at the time so we were desperate to get back and do some work, and things were going really well, so.. And they took us out of the scanning room, into a more quiet room while they typed up the report. And so we had to go out a couple of times, [wife] had to walk around, and she had a drink of water, which is supposed to sort of change things inside, or help the baby turn around or something because the sonographer couldn't get the measurements she wanted. I want to stop having such horrible thoughts. I was booked back in to discuss management options, if nothing had happened. And I, and, I felt the weight of deciding what to do about it. Somehow, I walked from the sofa up to the bathroom and told my partner. You may like someone to come with you to the scan appointment. We had the baby cremated. Baby loss support Seeing your baby on a screen can be really exciting. The same sense of expectation. And I thought that if I were faced with the possibility of having an amnio, hours of discussion would follow - I would spend days mulling it over. News stories, speeches, letters and notices, Reports, analysis and official statistics, Data, Freedom of Information releases and corporate reports. I was then told yet again bad news. Which she reassured us that she'd be absolutely fine, this was a one-off. It is also sometimes referred to as the mid-pregnancy scan. We both thought we would like some good to come out of this horrible experience, so wanted to talk to somebody about the possibility of using the body for research purposes. They sort of drew some diagrams, and they said, 'But we need to refer you to a specialist to confirm the diagnosis'. The same anticipation. So obviously quite relaxed. I know it is still early days. I know its hard- but i really wouldnt worry about it too much as the worry will stress you and your body out. Which is what I'd seen. Sometimes specialist scans such as 3D scans, or MRI scans, are used to examine the baby in greater detail. I had to wait for a doctor to explain the situation. And as, and as soon as I saw the pictures of the scan, having had two normal pregnancies, even I could see that there was a marked contrast between this pregnancy and the pictures that I'd had previously. And I'd been on the internet looking up all sorts of things and everything was so negative, it was very depressing, because I thought, 'Well, maybe they've made a mistake, or maybe it's something they can fix, I don't know'. Have I misunderstood what's going on?' And attribute some blame to them. I endured 12 hours of medication and in the early hours February 7, 56 days after my first scan (at nearly 18 weeks), I miscarried our babies. I still feel guilty, I still cry at random times. You do not have to have the scan. So I was, they couldn't actually finish the scan then, the baby was moving around too much, so they couldn't scan the heart and the stomach. I was sat on the sofa working, my son was at nursery and my partner was in the bath. That he was small. It feels very lonely and isolating. You can change your cookie settings at any time. I was told that while bad news at the 12 w scan is often of the life or death kind, bad news at the 20 week scan is often of the 'needs an operation in childhood' or 'needs to wear a brace for a year' kind. This is not what I imagined pregnancy to feel like', Baby Loss Awareness Week - Voice Five - Bryony Seabrook. And so this one can't tell you anything, it's pictures, you're going, you're going to see your baby, you're going to get pictures. I felt crushed, I wanted him to at least acknowledge what had been found already. At first, I still had to deal with the physical implications of having given birth. Some people want to find out if their baby has one of the 11 conditions and some do not. That's fine. There are no known risks to your baby or the mother from having an ultrasound scan but it is important that you consider carefully whether or not to have the 20-week scan. 20 week scans look for 11 different anomalies as a rule, however, indicators (markers) are not terribly reliable and in all the literature I found, the targets set for stonographers look like they only pick up around 50% or less of these variants. This was on the Friday. I believed at this point I had miscarried, they wanted me to come back I'm for a follow up scan. And I could see, before she even said anything I could see that there was something wrong with the heart. On the next shift, the new midwife asked us again. The same rush of excitement. 80 percent of my pregnancies have ended in death and I felt like they were telling me those babies didn't matter. I had no idea if we were doing the "right" thing. He started to scan me with a cold expression, then told me, "it didn't look good" and that "my womb looked raggedy". And I know I can't hurry up the process of grieving. It would have been nice to see someone straight away because I was in such shock. My mum arrived early to look after our son, and my partner and I got a cab to the hospital. Our nightmare began when I went for my 20-week scan. I pray it's just her heart but I can't see anything else is wrong as I have been scanned by a consultant since I was 14 weeks and every time he has said everything looks okay and she is growing consistently. 1. I could hardly breathe. The rarest scenario is that the baby is severely ill and choices will need to be made. There was cause for concern. Being deeply unhappy and kind to others at the same time is nigh on impossible. Well send you a link to a feedback form. We talked about the different sorts of pain relief I could have and I opted for a morphine drip, which I could control. I've still had no cramps or bleeding so fingers crossed everything is ok I just couldn't believe I fell down the stairs, I can't remember the last time I ever did that! Instead, I had to raise a glass of water to my mouth, take a swig and swallow the tablet. The doctor wanted to do another blood test to confirm a significant drop in my hormone levels. I give pregnant women dirty looks. The gel makes sure there is good contact between the probe and your skin. I faced another internal scan where I began to feel helpless and alone. It was all going wrong and I wanted to get as far away from the hospital as possible. So that was it. Severe chromosomal conditions such as Edwards' syndrome are now often picked up in the first trimester antenatal screening but itwill usually be more obviousat the 18- 20 week scan, though usually a firm diagnosis will not be made until one or two specialists have weighed up all available evidence about the baby - which usually means that another expert needs to scan the baby again, or until the woman has had an amniocentesis. And still we asked to see a, Impact of the 20-week and later specialist scans. And she said that, you know, as the, if the baby did develop further there would probably be other problems with internal organs that weren't really that visible at that stage. When he came back, he agreed on a termination. Two days, after on Christmas Eve, (my 12 week date) I had more blood tests. x. Many described how sonographers and doctors were very restrained and didn't speak at all until they had analysed all the baby's details. Thick milky discharge at 14 weeks.tmi pic attached. It would be a personal tragedy for my partner and me, but that is all. It is as though our pain means we've earned the right to be taken more seriously. So I sort of went home quite, fairly kind of happy and I, at, at this point I hadn't any idea things could go wrong anyway. Life expectancy of 30 or 40. To comment on this thread you need to create a Mumsnet account. Your mind has closed to the possibility that there could be anything wrong. The 18 -20 week fetal anomaly scan is a watershed in most pregnancies because for the majority of women it will be the last time they are scanned before giving birth. For once in my life, I had been organised. If you choose not to have the scan you can still have all other parts of your routine antenatal care. And my husband, we never got to sit next to each other in the consulting room, my husband was across the room from me, and I was sat next to the consultant, and we were laughing and joking with him about, you know, the home delivery, and everything was going to be, 'Are you still on for the home delivery?' Let a mum know you're thinking of them send one of our personalised Mother's Day cards today, Home I used to think the feeling of your baby kicking inside you and the sight of a foot poking against your skin were the most fantastic things in the world. So we hid in our house. He started to scan me with a cold expression, then told me, 'it didn't look good' and that 'my womb looked raggedy'. The midwife was on the verge of tears and I felt responsible. 'I was having nightmares and panic attacks. Please note that the opinions expressed by users in Tommys Book of #misCOURAGE are solely those of the user, who is unlikely to have had medical training. We'd sort of put those discussions to the back of our mind, and then all of a sudden there are other abnormalities so yeah it was a bit a bit of a shocker [laughs]. She brought up a picture of the heart on the screen. Last updated July 2017. But other than that everything was fine. Yeah - in, stomach, out. And again, you know, you read all the books and it tells you 'this is the diagnostics', but after a while you don't hear that inside your head any more No, no, no, I'm fine - because everything's perfect. We just couldn't use the words. I didn't have a clue. You will be able to discuss this with your midwife or consultant. Had 34wk scan last week and all is well - of all the babies found to have a two vessel cord, was told less than 6% experience any growth issues etc. Try to relax and take it easy. So I took the test and jumped in the shower. Though the 18-20 week scan can detect when certain parts of the baby's body have grown abnormally, it may not be possible for clinicians to identify why it has happened or make a firm diagnosis based on the scan alone. While some parents understood the clinician's restraint - even when they had to wait an hour or more for a definite diagnosis - others disliked being kept in suspense and wanted to be told what the clinician was thinking. Limitations of the 18-20 week scan Except for the persistent, nagging doubts. Went back a week later for the scan and, you were with me for this one, weren't you? But here I was, minutes later, lying down, waiting. (See 'Resources'). But it was very evident. Please ask your hospital about this before your appointment. Sometimes women were told that the sonographer had found a 'marker' or sign of a chromosomal condition and had to wait for an amniocentesis to confirm the findings. I managed to tell my mum, who said she would come with us to the hospital. Some people we talked to had not had a 18-20-week scan, either because their babies' abnormalities had been detected by earlier . The 18-20 week antenatal scan and further tests. I get terribly irritated by my close friends and family. I've realised that being a nice person is a luxury some can't afford. So at 20 weeks I went for my scan with my husband, with my daughter, to get our photographs. I should stop being dramatic and pessimistic. And then, so I went to my next scan, which was the 20-week abnormality scan, and we took our first child with us, I think he was 17 months old at the time. I felt I needed proof of what was wrong before I take such a huge decision and that I couldn't do it based on what someone had written on, on the paper. Mm-hm. I had hope that the little bumps inside me were fighting just as much as I was to stay with me. So we had to go in and out a couple of times, and we were just waiting around for ages and ages. The first words I said were: "If there's anything wrong then it's my fault", I had been working 70, nearly 80 hours the previous weeks and pushed myself hard. It's part of our family. Cardiac surgery can do some amazing things. Or, at the very least, heart problems. We were told to go to the hospital immediately. The sonographer will be able to tell you the results of the scan at the time. The results come in stages.

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