celebrities with bicuspid aortic valve

The aortic root is moderately dilated (max 46mm sinus to opposite commissure but you can measure 48off axis). 1, 2 Much of the data relating to its complications derive from necropsy studies since reliable . John Fox, NFL coach, suffered from Aortic Valve Disease. How long does it take for the homograft to completely heal? Last week I visited a doctor and here are the changes for the last year (before|after): Regards Diagnosis was made because pulse dropped to 30 (normally 52), and pacemaker was thought to be needed (no symptoms other than low pulse for a few days). I asked her when I get my valve replaced(it will have to be replaced sometime in the future) will they repair my aneurysm and to my surprise she said no. For example, his spurt in enlargement happens to coincide with his spurt in growth. Again, thank you and bless you for taking the time to talk with us here! But Bob, you confirm that it does for you; and unfortunately I see same for me although 25 years younger. It is very difficult to find information regarding the athlete and BAV. Click to share on Twitter (Opens in new window), Click to share on Facebook (Opens in new window). It was reported on April 5 that the 75-year-old Jagger underwent successful transcatheter aortic valve replacement (TAVR) at an undisclosed hospital in New . Then, a Dacron fabric tube can be used to reconstruct the aorta, in a so-called valve-sparing aortic root replacement. Patients with BAV who have a normal size aorta, with no stenosis or regurgitation of the aortic valve, can participate in sports without restriction. 2023 Baton Rouge Clinic. In addition to running, I also perform moderate to high intensity resistance (weight) training 5-6 times per week. After the scans, ultrasounds, stress tests and TOE, I was diagnosed with BAV with no Stenosis, no Aortopathy and no evidence of Coarct and normal LV size and function. Do you think the weights Im doing at the moment seem OK with those results ? California Governor and movie star of films including The Terminator and The Predator, Arnold Schwarzenegger marked the 10-year anniversary of his heart surgery at USCs Health Science Campus. Sory but I dont speak very vell english. I dont know why this formed as I have had the problem valve replaced many years ago. After that, most patients can gradually return to activities that put stress on the sternum and upper extremities. This have affected my son psychologically since he loves playing soccer what should I do. Thanks for the infoI really appreciate what you,have to say. Jeffrey Howell didn't know he was born with a bicuspid aortic valve until December 2015. Thank you so much. Im not surprised that youve received a conservative recommendation about exercise. Can you tell me what is to much, are push ups or pull ups heavy lifting, is 3 time per week 5 km running with 10-12 km/h pace to much? Im a 33 yro female, diagnosed with BAV. Defects can involve the walls or valves of the heart, or they may affect the arteries and veins near the heart. The heart has a difficult time coping with extra demands of exercise. Oh, plenty. Am I crazy? . Your email address will not be published. Is it right to declared someone having BAV unfit for the post of a chemist? running? I am 51 and leaning towards a tissue valve because of my activities and that I am a firefighter. He was just diagnosed with functional BAV due to partial stuck together of two leaflets (out of three, as far as I understand, they are equal). March 7, 2023, Rob Riley Consensus guidelines are developed to be broadly applicable, but the guidelines may not be applicable in a given athlete patients circumstance. Maybe a genewho knows. Now at 33 years of age the valve is 23 years old and has served me very well. Mild aortic valve disease without symptoms may only require frequent health checkups. What is the average life span of a tissue valve? I can imagine it might be difficult to make arrangements when you live in one country and your doctor(s) work in another. If youre questioning the recommendations youve received, perhaps a second opinion might be helpful. Thanks for my previous response a few weeks ago. Abstract. First, Id encourage you to follow your doctors advice. In 1997, Dr. Starnes led a team of three surgeons who replaced the aortic valve in then-actor Arnold Schwarzeneggers heart. Moreover, there is a myriad of operations that such patients may have had, each with its on set of considerations. A week after he made the varsity team as a freshman he was told by the doctor he couldnt play. after surgery and was playing football again by September. Its also clear-cut that patients with significant enlargement of the aorta to greater than 5.0 cm need operation for replacement of the aorta. As of Monday, my BP at the echo appointment read 115/66. This almost seems like an off the shelf answer and Id therefore be really keen to find out your thoughts? Bicuspid aortic valve. The Best Amazon Presidents' Day Deals of 2023. And I dont know if my Cardiologist follows the same guidlines, but I dont think hes under the impression that Im any kind of athlete either. . Im not aware of studies explicitly about athletes after Ross procedure for BAV. The confusing thing I hear is some cardiologists telling BAV people not to life over x lbs. Dear Doctor, During that first month we recommend ample walking as the best form of exercise. To quickly review, individuals with BAV have an aortic valve with 2 unequalinstead of the usual 3 equal sizedleaflets. Finally, athletes are not spared. Finding this site is such a relief / source of hope for me thanks so much Dr. Larry!. I had my BAV replaced in Feb. 2005 (porcine tissue) with a Dacron repair of the ascending aorta. The only question I have is in regards to having my children screened. He isnt interested in anything else. Bicuspid aortic valve (aka BAV) is a form of heart disease in which two of the leaflets of the aortic valve fuse during development in the womb resulting in a two-leaflet (bicuspid) valve instead of the normal three-leaflet (tricuspid) valve. 3. I just thought it was muscle strain., My body cleared the blockage itself, said the game show host, who credited the aspirin he was taking for what he thought was simple muscle pain. Valve replacement with either a tissue (bioprosthetic) valve or a mechanical valve is, by far, more common. Will I need surgery? I have completed two marathons. Open heart surgery is sometimes the best option, but it is not always the only option. Thanks for the very insightful post, and for taking the time to reply to everyone here. I can tell my story. Im not sure theres enough information at hand to offer sound advice. Also, my next appointment is, unfortunately the week after my next marathon (which I will be pacing and not racing). Its now 8 months after surgery and Im pretty much back in my every day life, was even granted to attend my pilot medical tests which are due in 2 weeks. host, 76, suffered a mild heart attack in 2012. I am 26 yera old , I have aortic aneurisem. The aortic valve allows oxygen-rich blood to flow from the heart to the aorta. The other theory is that there is a structural problem that leaves the aortic wall weak. My problem is with cardiologists stating do not lift anything over 50lbs. I have ramped up my walking to 30 minutes, keeping my heart rate under 100 bpm. The aortic valve is between the left lower heart chamber and the body's main artery, called the aorta. If echo shows a normal size, thats probably okay. "I have heart disease, and I found out about five or four years ago, the singer, now 49, told PEOPLE in 2008. I was diagnosed age 4 and am now 35. But if you have a bicuspid aortic valve, you only have two cusps. In fact, like most people, the 25-year-old had never heard the term before. Over the past 3 years, my endurance has declined significantly, and now I cannot run a lap on the treadmill without some walking; however, my numbers from the semi-annual utrasound have not changed much. Have tried to get a personal trainer that specialises in all things heart related here in the UK but there don`t seem to be any around despite searching. This gives a chance for the sternum, which was split during the operation, to heal completely. And lastly, the degree of healing in the remaining (unoperated) aorta probably has a big impact on the potential risk. More difficult questions relate to what are acceptable sports/exercise if operation is not (yet) needed. They are able to see my son this Friday, which i am much more comfortable with! When patients have moderate to severe aortic regurgitation, exercise can often be difficult. The lines are the edges of the valve leaflets that open and close to let blood through. For example, are there data that shows what happens to aortic diameters once sports have been stopped? My son at 11 months was diagnosed with BAV. Based on the information Ive provided, I would greatly appreciate your advice and opinion on the matter. Here are stories of some celebrities with this condition: Not everyone who has a congenital heart defect knows about it, so its important to be vigilant about the health of your heart. Randyyour situation has many similarities to mine; I would be very interested in sharing experiences. While I no longer due very strenuous activities, I still play softball, golf, kayak, ski, and do play hockey every now and again. But I recognize that not all cardiologists or heart surgeons would agree. I see in this blog that Dr. C noted: Compared to our own native valve, all of the available prosthetic substitutes have a small degree of aortic stenosis built in, unfortunately. He has been restricted from playing contact sports since hey was 10. Now at 74, and after having AVR I am 10 weeks into the dont lift more than 10 pounds restriction. For these individuals, provided there is no other relevant heart disease, it may be appropriate to have follow-up echocardiogram and/or CT scanning every 2 years. I want to continue weightlifting .. what is your opinion about this ? Enlargement of the left ventricle can be an indication that the heart suffers from the aortic regurgitation, even if the regurgitation doesnt produce symptoms like shortness of breath. When the aorta is enlarged in the setting of BAV, there are a couple possibilities: the valve needs to be replacedor it doesnt: Valve repair. I exercise, eat well and keep my weight down. The video is just 1 min 42 sec long. Beta blockers are frequently prescribed in the circumstance you describe, but in truth we dont know if they will be effective in delaying surgery for any given patient. I dont train a lot, like 2k bike, 500k run and 100k swim yearly and few competitions sprints and one half IM in a year (32 years old). Most people require treatment once symptoms develop. The typical symptoms are fatigue or shortness of breath, particularly with exertion. Individuals with BAV can develop progressive narrowing or obstruction of the valve, leaking of the valve, and . His cardiologist said he cant play. Pathology. I know it can be frustrating when you get conflicting opinions regarding the safety of exercise. No pulmonary hypertension In your experience how long are we talking before I have to have surgery and do beta blockers really help in prolonging the need for surgery. No one loves life more than I do, read the statement. Hi dr. My mother passed away last May following her second AVR. I knew none of this until a year ago. Although bicuspid aortic valve is typically asymp tomatic at fi rst, it is commonly associ-ated with progressive valvulopathy and tho-racic aortic disease. PS I am really interested to know if HIIT is too intense a system of exercise for people with BAV. Im 53. This might reasonably translate into some measurable improvement related to physical exercise. Even if its one person I help. Best for athletes like you to have a discussion with their doctor(s) and settle on a defined, mutually acceptable course of action about which sports activities are safe. Yesterday, for example, I spoke with a 71-year old patient who just had aortic valve replacement surgery due to this . All Rights Reserved. since the last worsening ten years ago, the situation still stable and each year I went to the doctor to have the tests, they still tell me nothing has been changed since. The procedure has the potential to bring the aorta to 4.3/4.4 and avoid further enlargement. I am also in grey zone waiting for surgery. I am a 28yr old male, and Ive just found out about my BAV. Thank you for this blog! Thank you sincerely for your time and information. Although the vast majority in each group (97%) underwent TAVI via the transfemoral approach, bicuspid patients were less likely to receive conscious sedation (57% vs 62%) and more likely to be treated with the largest 29-mm valve size . I would like to get back into it, but obviously I have been having some concerns. Mild degrees of aortic regurgitation are usually well-tolerated and do not produce symptoms. Semilunar valves: The pulmonary valve and aortic valve. There are a multitude of patient-specific circumstances that must be considered when deciding if and when operation is needed. I would very much appreciate your opinion weather he can continue his regular football training or should stop it. "I had many of them, but I thought, 'Nah.' Aortic stenosis will limit athletic performance at the top end. I get the fact that lifting excessively can cause a spike in blood pressure, but only under certain conditions (i.e. Film star, former California governor, and seven time winner of the Mr. Olympia title Arnold Schwarzenegger published positive images to his social media platforms on Friday as he recovered from heart surgery. Like I said, peoples experiences are all different. After the first month, patients are generally allowed to return gradually to all of their previous activities. As I have aged I have upped the reps to 15 or more and two or three sets max, sometimes doing a set or two of 5 reps with heavier weights. If he is a candidate for valve replacement are these sports he could ever return to In the best case scenario? Ive recently joined the gym to get fit an toned up but I cant get a clear answer from the cardiologist of what weights I cant actually do at the gym. Fox News anchor Bret Baier has a . The procedure was performed at the Cleveland Clinic. I was also advised that it is really the static weight-lifting that could pose a problem. There is very little scientific evidence to guide us here. Im 33 from UK and have known about my BAV since I was around 18. Onside rations would be needed for hose with Marfans syndrome or other diseases of the aorta. The abnormal anatomy of the bicuspid aortic valve is complex, and a classification schema of 3 anatomical types has been proposed by Sievers and Schmidtke. If you suspect you have a heart issue, either because you have symptoms or a family history of heart problems, see a doctor. The timing is my choice.. I had a Bentall with mechanical valve done in Feb 2017. I am riding my 3 rd anual Belgian Waffle Ride today. There are 2 broad categories of heart valve substitutes that can be used to replace the human aortic valve: mechanical valves or bioprosthetic (tissue) valves. The guidelines do not address the frequency of surveillance for individuals with BAV and no enlargement of the aorta. She was originally under the impression she felt the way she did simply because she was exhausted. From afar, its hard to know what might be responsible for your symptoms. Arnold Schwarzenegger Helped Greta Thunberg Get a Tesla, Where to Watch the Biggest 2023 Awards Contenders. The issue of how much (& what types of) exercise after surgery is difficult because we dont have good studies (& evidence) upon which to base recommendations. All aorta is normal, valvula normal funkcion only sinus valsava 35-37mm. "Schwarzenegger's pulmonic valve was successfully replaced.". Anything you can offer up here would be very much appreciated. Im not familiar with employment eligibility issues with BAV, even in this country. In both echocardiographic cohorts and surgical series, pure aortic regurgitation is significantly less common than stenosis. BAVD is a malformation of the aortic valve present at birth that leaves you with two flaps instead of three, tripping up blood flow to the aorta. Something they suspect is also from birth but never previously picked up. 2023 Cond Nast. looking forward for healthy life without surgery any possibilities??? In short, I consider myself to be a high level athlete. Those with symptoms are usually identified (BECAUSE of those symptoms) in the first year or two of life. Normal great vessel size Arnold Schwarzenegger was born with a bicuspid aortic valve, in which the aortic valve has only two leaflets, instead of the typical three. 1) What kind of sports are recommend to me according to my situation? I had to take time off gym, when I returned I only did light weights and only walking on the 4x a wk and the same issues where still there.

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